Camilita avatar
Camilita
36
6 months ago

Any other neurospicy souls in here with systematic autoimmune illness?

I’m still in process of getting diagnosed, so I am not sure what’s “wrong” with me, however I am being assessed by a rheumatologist. . I worry a lot about missing mentioning symptoms to my doc (it has happened before…) Due to my adhd I struggle to notice the consistency and frequency of my symptoms and such things as taking notes… however I have lately become convinced that I have symptoms of neuropathy 😬 my clumsiness has evolved and my feet and hands go numb…. I am also unfortunately burdened by Cptsd which has had me disassociate often throughout my life, so “ignoring” my body is a talent of mine 😅 Does anyone have any good advice or tips and tricks that is helpful for an adhd-soul going through a similar process? Ideas of how to organise myself throughout this? Please don’t hesitate! 🙏 ✨Just oversharing about any kind of experience of hardships with health is much appreciated and helpful. Even if it’s not related to autoimmune illness it will still make me feel less lonely in my struggles 🫶✨



Posts and comments here share personal experience — not medical advice. For treatment questions, talk to a clinician.